12-04-2010
10:04 PM
12 Loves
Life is quite a struggle Both physically and financially especially when my husband was diagnosed with "muscular dystrophy" and he's turning 64 years old next April, 2010 and he nor my whole family have ever been to either of these theme parks "Disneyland nor Disney World" nor any vacations . We have brought up 4 wonderful children and our youngest daughter has "MOEBIUS SYNDROME" a very rare muscular/ nerve deformities which the fifth and sixth nerve are not completely developed which control the face and physical movements that make her feel inferior and low self-esteem since classmates bullied and make fun of her deformities and disability to show any facial expressions and her eyes does not close fully which make her very susceptible to eye infections since it doesn't close completely during sleeping time and no lubrications so it's so dry all the time. He's still working on a low low income just to educate and provide a a home for my four children and a wife who has lot of medical problems and taking a lot of prescriptions for "fibromyalgia, osteoarthritis, asthma, COPD, severe migraine, panic and anxiety disorders, carpel tunnel, restless leg syndrome, etc. We hopefully wish that my husband , my daughter, me and my whole family can have a wonderful trip as a family to these theme parks before my husband become totally disabled. His disabling condition is turning for the worst and so are mine and my daughter. We never had a family vacation since we are financially unable and our number one priority as parents is to provide them a good education for each of them as much as possible even if we have to sacrifice ourselves as parents. Hopefully someone out there have some compassions for us with such difficult , striving society and our very complicated medical conditions and we would like this to be a very memorable, unforgetable enjoyable family vacations. Thank you very ,much for taking time to read this!!!!!
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